The following information may answer some specific questions. As always, our Care Navigation Manager is available to identify resources and information. Email larissa@epilepsycowy.org or call 303-502-5979.
- Americans with Disabilities Act http://www.ada.gov
- U.S. Equal Employment Opportunity Commission (EEOC) http://www.eeoc.gov/laws/types/epilepsy.cfm
- Assisted Living Options for People with Disabilities https://www.assistedliving.org/assisted-living-options-for-people-with-disabilities
- Realm of Caring Foundation https://realmofcaring.org/
- Epilepsy Foundation http://www.epilepsy.com/epilepsy/medical-marijuana
- Overall Respite Options: https://www.care.com/c/stories/10269/the-special-needs-respite-care-guide-your-care-options/
- National Respite Locator Service (Nationwide): http://www.respitelocator.org
- Lifespan Respite https://acl.gov/programs/support-caregivers/lifespan-respite-care-program offers many different activities/resources to view
- Mental Health Conditions in Children and Teens https://cshcn.org/resources-contacts/mental-health-conditions-in-children-and-teens/
- Organizing Your Child’s Health Records https://cshcn.org/planning-record-keeping/care-organizer-for-parents/
- Care Plan for Children with Special Needs https://cshcn.org/planning-record-keeping/create-your-own-care-plans-for-parents/
Consult with your local state agency regarding specific employment rights within your state of residence or workplace:
- U.S. Equal Employment Opportunity Commission (EEOC) http://www.eeoc.gov/laws/types/epilepsy.cfm
- Job Accommodation Network (JAN) https://askjan.org/indiv/index.htm
- UCB Family Epilepsy Scholarship Program: http://www.ucbepilepsyscholarship.com/
- AAHD Scholarship Program: https://www.aahd.us/initiatives/scholarship-program/
- Patient Advocate Foundation: www.patientadvocate.org/connect-with-services/apply-for-a-scholarship
- Ryan Siddique Fund: http://www.ryansiddiquefund.org/
- CURE Education Enrichment Fund: https://www.cureepilepsy.org/get-involved/scholarships/
- American Epilepsy Society Find A Doctor https://my.aesnet.org/findadoctor
Note: This list encompasses all active members of the American Epilepsy Society, which includes health care professionals who are in clinical practice and have agreed to share their information, as well as other non-health care professionals interested in the field of epilepsy. However, this database in not inclusive of all epileptologists or specialists.
- Colorado & Wyoming Epilepsy Centers Find an epilepsy center near you.
Medicare Resources in Colorado
Colorado residents have access to a variety of agencies and programs to help you understand how to use your benefits, recognize and report Medicare scams or abuse, and appeal denied claims or canceled policies.
Colorado Division of Insurance
The Colorado Division of Insurance regulates insurance policies enforces laws that protect consumers. The State Health Insurance Assistance Program provides you with free, unbiased counseling regarding post-retirement health insurance options. SHIP counselors are volunteers trained to answer questions about Medicare benefits, Medigap and Medicare Advantage Plans, and long-term care insurance. They can also help clarify medical bills and dispute billing errors.
Contact Information: Website | (888) 696-7213
State Unit on Aging
Colorado’s State Unit on Aging oversees programs funded through the Older Americans Act. Through your local unit, you can get in touch with a SHIP counselor to help you sign up for Medicare or go over your benefits and cost-sharing obligations. The unit also provides civil legal services and operates Aging and Disability Resource Centers throughout the state.
Contact Information: Website | (303) 866-5700
Senior Medicare Patrol (SMP) & Medicare Fraud
The statewide SMP program assists you in recognizing, preventing, and reporting Medicare fraud, billing mistakes, and abuse. Through this program, counselors provide free, confidential advice regarding issues such as getting billed for services you didn’t receive, getting charged too much for services your doctor ordered or getting calls from someone trying to sell you a Medicare plan.
Contact Information: Website | (800) 503-5190
Colorado Legal Services
Colorado Legal Services provides free civil legal aid for older adults. Through this agency, you can get help applying for Medicare or addressing billing errors or canceled policies. The agency can also help you identify other public benefits you qualify for, including Social Security and Medicaid.
Contact Information: Website | (303) 837-1313
- Medicare | What’s Medicare?
- HHS | Who Is Eligible for Medicare?
- Medicare | Medicare Costs at a Glance
- Medicare | How Do Medicare Advantage Plans Work?
- Medicare | How to Get Prescription Drug Coverage
- Medicare | 6 Tips for Choosing Medicare Drug Coverage
- Medicare | What’s Medicare Supplement Insurance (Medigap)?
- Medicare | Medigap & Travel
Colorado Gerontological Society
Colorado Gerontological Society has an abundance of resources for those who identify as senior citizens. If you need assistance understanding the Medicare system, or if you are having difficulties affording medications once your insurance changes to Medicare, this is the agency for you!
Contact Information: https://www.senioranswers.org/ | (303) 333-3482
If you have lost a loved one to SUDEP or another epilepsy-related cause, we offer you our deepest condolences. We are here for you during this confusing and tragic time, and can help identify resources and support so that you do not have to face this alone.
The Epilepsy Foundation of Colorado & Wyoming can support you and your family with:
- Accurate information regarding SUDEP and other causes of epilepsy-related death.
- Individual or family support from a bereavement support facilitator familiar with SUDEP.
- Online Bereavement Support Group designed to help families connect with others who have lost a loved one to epilepsy in a safe and confidential environment.
- A Remembrance Wall at our Walk to END EPILEPSY.
- Advocacy as needed, including coordination and assistance with the death investigation process.
- Access to and assistance in participating in SUDEP-related research opportunities.
The Epilepsy Foundation of America’s SUDEP Institute leads education and awareness efforts targeted to people living with epilepsy and their caregivers as well as medical professionals, including members of the death investigation team. Call 800-332-1000 and press 1 or email sudep@efa.org to learn more about our services. Learn more about these programs and how you can become involved.
While most people who develop COVID-19 (novel coronavirus) will have only mild to moderate symptoms, some people may need to see a health care provider or be hospitalized.
