The following information may answer some specific questions. As always, our Care Navigation Manager is available to identify resources and information. Email larissa@epilepsycowy.org or call 303-502-5979.
Colorado Resources
- Disability Law Colorado - www.disabilitylawco.org Phone: 303-722-0300
- Rocky Mountain ADA Center- http://www.adainformation.org/ , 800-949-4232
- Job Accommodation Network – Workplace safety - http://askjan.org 1-800-526-7234
Wyoming Resources
- Rocky Mountain ADA Center- http://www.adainformation.org/ , 800-949-4232
- Job Accommodation Network – Workplace safety - http://askjan.org 1-800-526-7234
- Realm of Caring Foundation https://realmofcaring.org/
Overview – https://hcpf.colorado.gov/hcbs-waivers
Adults – Adult Waiver Flowchart
Children – Children’s Waiver Flowchart
Assistance Applying for a Medical Waiver – https://hcpf.colorado.gov/case-management-agency-directory
Consult with your local state agency regarding specific employment rights within your state of residence or workplace:
- Division of Vocational Rehabilitation – https://dvr.colorado.gov/
College & Higher Education
- UCB Family Epilepsy Scholarship Program: http://www.ucbepilepsyscholarship.com/
- AAHD Scholarship Program: https://www.aahd.us/initiatives/scholarship-program/
- Patient Advocate Foundation: www.patientadvocate.org/connect-with-services/apply-for-a-scholarship
- National Association Epilepsy Center
- Colorado & Wyoming Epilepsy Centers Find an epilepsy center near you.
- For more specialized recommendations please contact Larissa at info@epilepsycoloradowyoming.org
If you have lost a loved one to SUDEP or another epilepsy-related cause, we offer you our deepest condolences. We are here for you during this confusing and tragic time and can help identify resources and support so that you do not have to face this alone.
The Epilepsy Foundation of Colorado & Wyoming can support you and your family with:
- Accurate information regarding SUDEP and other causes of epilepsy-related death.
- Individual or family support from a bereavement support facilitator familiar with SUDEP.
- A Remembrance Wall at our Walk to END EPILEPSY.
The Epilepsy Foundation of America’s SUDEP Institute leads education and awareness efforts targeted to people living with epilepsy and their caregivers as well as medical professionals, including members of the death investigation team. Call 800-332-1000 and press 1 or email sudep@efa.org to learn more about our services. Learn more about these programs and how you can become involved.
- Call Larissa at 303-502-5979 or email her at info@epilepsycoloradowyoming.org
- Find your local Center for Independent Living – https://www.ilru.org/projects/cil-net/cil-center-and-association-directory-results/CO
- United Way 211 – https://www.211.org/